Karter slept well and woke at normal time, just before 7 with no seizures. He appeared more alert this morning than yesterday. He ate breakfast before we left for the day and then slept all the way into the hospital.
We had an appointment with the neurologist at 9am. They weighed him and he had lost a bit of weight since the beginning of the week, but they tell me that is normal in the "switch".
The neurologist explained to us that they look at the next 3 months as trial. She assured us that it can take almost a month for him to gain back all his energy. The will use this next month or so to "tweak" the balance and make any necessary changes. At the three months mark, depending on seizure control, they may adjust his anti-seizure medications, but not before that.
We were given the final prescriptions and supplement information and then we finished off the morning with one more time in the kitchen preparing food for the following 24 hours. When we were done, we were sent on our with with the final paperwork and supplies that we needed.
Kurt and I debriefed a bit about the week, when we went to lunch. We
both agreed that although we received a lot of information, we were not
feeling overwhelmed, frustrated or worried about the days that lie
ahead. Instead, we were relieved and felt we had been given all the
skills we needed to face this each day. Interestingly enough, the lack of information before we started and all the unknowns were so much harder on us than making the changes to our life to accommodate this treatment. For anything that may come up
that we might not understand or know how to handle, a support team
has been put in place to assist us, so we are not on our own. We are so thankful to have a great team of people on our side!
Although Karter slept for most of the morning by lunch, he seemed to have regained his alertness and was getting back to his normal self. By evening, he was laughing and full of energy, we even managed to keep him up late. He ate all his meals and seems to really enjoy them. My biggest concerned was about what he would eat and that he would like the food given to him. He has really surprised me and made this transition easy.
We are pretty happy that the "induction week" is over and we are confident as we move into the next few days and weeks that we can make the necessary adjustments to life to accomplish a successful transition for Karter.