Wednesday, June 19, 2013

Ketogenic Diet - Day 3

Karter woke at normal time this morning, however he was not his jovial self.  He seemed tired but tolerant.  He played on his mat for a short while until it was time for breakfast.  He seemed uninterested and was increasingly tired.

I had to force in the breakfast and by the time I was done, he was fast asleep. 

We left early so that we could run by the store and pick up a couple necessities that we needed for Karter.  He slept all the way in.  I just happened to walk into the store behind Kurt and Karter.  I did not even get into the door when I saw Kurt coming out.  I noticed that Karter was covered in vomit!  He was lethargic and needed to be cleaned up.

Sparing you with all the details of no soap and towels in the washroom and no change of clothes...new outfit bought, makeshift clean up done, boy wrapped in towels...we headed LATE to the hospital for the days sessions.

GREAT start to the day!

When we got the the hospital, Karter was still very lethargic and was in a deep sleep.  We talked through the events of the morning.  In the end, it was determined that Karter was "too ketotic".  This means, he went into ketosis too fast and so his body could not cope.  The solution...30 mls of apple juice.  The sugar in the juice raises the blood sugar levels bringing down the keytone level in the blood.  We skipped morning snack, gave Karter a sponge bath and new clothes and let him nap for the rest of the morning.

The morning was exactly what they had warned us about, so it was comforting to know that there was nothing out of the ordinary to worry about in his current state.

Once we were all together, we headed to the kitchen again.  This time, it was our turn to create the meals.  We did all his meals and snacks for the next 24 hours.  (I'm not gonna lie, there was a little competition going between Kurt and I to see who could get the closest weights with the foods...we had to have some fun!).

Karter slept the morning away. We woke him for lunch, which he ate, and then he headed back to sleep for the rest of the afternoon until our return home.

We went over 1 last part of teaching after lunch and then headed home.  We will no longer have to take his blood sugars, but we will have to measure keytones twice a day ongoing.

Karter ate dinner and then perked up for the evening.  By the time he went to bed, he seemed to really have come around and seemed to be a bit more himself.

This by far has been the hardest day for Karter so far, we have been told that it is because Karter's body is making the major "metabolic shift" today.  The lethargy and vomiting are normal and the tiredness can continue anywhere from 2 days up to a month; we are really praying that for Karter we see a fast recovery and that he returns to his old self quickly.

Tomorrow is our final day in clinic, we meet with the neurologist and do the final sessions before being "set free".  Not feeling overwhelmed at all, just very mentally tired.  Crazy how much intense learning takes out of you!

2 comments:

Tawn said...

wow ... really amazing. you two are the most incredible people, incredible parents - Karter is SO lucky to have you both :) Can't wait to hear Praise Reports on all your hard work ... God's a great God and we know He has massive things planned for Karter!! xo

Kristin said...

That sounds crazy. You guys are champs. Praying for you all, and knowing that this is just one more step in the marvelous big picture for Karter :)