On Thursday morning, we went to Children's Hospital for our 1 month blood work and check up. Karter had to fast through the night and until his blood work was completed. It was a simple draw and he did very well. No tears at all!
We had him weighed and he has regained everything he lost in the first couple of days on the diet. They were very pleased.
Up until the appointment, Karter had gone 9 straight days without a seizure and the four days prior to that, his seizures would start but not manifest into anything. The keto team was very pleased; so much so that they found Karter's neurologist and brought her in to tell her the good news.
Should this pattern keep up, they have said that the reduction of meds come September is a very good possibly. We were very happy to hear that.
We will go back at the three month mark (September) and the decision on whether to keep him on the diet long term will be made. At the same time, they will make a decision about medication.
We are very pleased at how well Karter had done on the diet. Although extremely prep intensive on my part, we really feel it is worth it and we are falling into a good routine for prep.
Sunday, July 21, 2013
Thursday, July 11, 2013
As I write this, the sun is streaming through the window as you lay quietly sleeping on the couch. I am always moved at how your peaceful nature touches me deeply. You exude a quiet strength, patience and a grace that teaches me daily how to do better.
I spent the last couple of days reminiscing all the terrain we have covered in your 7 years. (WOW 7 years!!!) There have been twists, turns, smooth roads and rocky paths. We have navigated life never feeling alone, always perfectly aware that our Heavenly Daddy has led along the right path. I am so thankful for that partnership!
This past year has been a great one! In your face and I see such a "big boy". That little boy look is gone and you have matured so much. Your such a handsome little man! Your legs stretch for days and I wonder when they will be longer than mine! You even have some lose teeth...I can't wait to see that toothless smile!
I love that you reserve soft kisses for only your Mama ...its a touching gesture that melts my heart every time. I cannot believe how well you make eye contact now too, I see such depth of knowledge in your eyes, a world of treasure just waiting to leap out! I love that bashful look you give me as you look at me out of the corner of your eye, pretending to not notice me - you're a silly boy!
Your voice...wow, have you ever found it! The gleeful squeals that I hear first thing in the morning to tell me you are awake and ready to start the day. The screams of delight when you see or do something you like. We can't forget that infection laughter that bubbles out of your belly when we play "ahhhhh boo!" and tickle you.
I love you son, more than I can ever express in a million words. You continue to expand my capacity for love, faith and patience. You are a treasure and a joy. May this year be one full of new things. You have endured much this past year, even this past month. Seldom you complain and often you just "go with it"...I learn SO much from you!
May this year be full of amazing new miracles, dreams and new adventures. You are one of my greatest treasures. I love you so much. Happy Birthday!