As you know we had our appointment at Children's Hospital yesterday at 3pm. We met the surgeon again and also met Dr. Connley, Karter's Neurologist. It was confirmed that the EEG that he had on Monday did show that the spasms have returned, just as I had suspected. So that left us with the obvious result of booking another surgery date. We will find out today or tomorrow what that date is, most likely sometime in April, I will update as soon as I know.
We left the hospital and I met some ladies I used to work with for dinner. Karter had been coughing and not feeling well yesterday. He was a bit fussy through dinner and when I returned home and took him out of his seat he was burning up, he had a fever of 103.7, so off to the clinic we went. The doctor gave him anti-biotics and that should ward off the possibility of further infection, like pneumonia.
Finally, we are also facing the difficult decision of having to cancel our vacation. When we booked the trip Karter had been seizure free for over a month, and so our insurance would have covered him because his condition was stable and controlled by medication. Becasue this past week the spasms have returned it is very unlikely that the doctor will agree to write that his condition is stable. That leaves us with no insurance for Karter while we travel. We are looking into other options but it appears at this point like we may have to postpone our trip until after surgery. As you can imagine we are so disappointed, we really needed to get away.
We are waiting until later today to hear from the nuerology clinic as to a date for surgery, it is possible that it could happen as soon as a few weeks. We are also waiting to see if there is any other insurance we could get to cover Karter in the event that he should need medical attention while travelling.
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