The update thus far....

The neuro nurse called today with another update. Although the neurologist has not been able to spend a lot of time viewing Karter's EEG findings, she has decided that it would be worthwhile to talk to the nuerosurgeon again about the possibility of more surgery. The meeting will happen in March, when she returns to regular practice. In the meantime, we will be increasing once again Karter's medication. This should help control the seizures a bit better.

In other news, we are still working to get Karter a stander and a wheelchair. We had chosen a stander back in the fall, however I needed to get additional funding for it from an additional organization. Today, I chatted with the physiotherapist and she let me know that the Red Cross has one right now that is similar one that we would not need additional dollars for. We are trying to find out if we can try the stander from the Red Cross first before we commit to it.

The Red Cross has an equipment 'bank'. Basically, any equipment we receive with At Home dollars(that is the government program Karter is on)is returned back to the Red Cross when we are finished or have grown out of it. Once returned, additional dollars are released for us to purchase something that fits him at that stage. Then those in need have a bank to draw from. People who are not on assistance or cannot afford to purchase brand new equipment, can get equipment from there.

The wheelchair is another story. We picked one out that met the strict criteria that I had. Basically, it needed to be small enough that it could move freely within a classroom setting, low enough that it was at child's level and it had to be light enough for me to lift in and out of the van with ease. The At Home program has since some back to our physiotherapist and asked her to get another quote on a different, cheaper chair. I am not sure that it fits our criteria, so I am a bit frustrated, as is the physiotherapist. She says they are quibbling over a few hundred dollars. If it comes down to it, I think we will find the money to pay the difference so that Karter can have the one that best suits him.

So at this point, we are praying for favor and that the equipment Karter receives is what best suits his needs. Although we are so thankful that we do not need to pay for it out of our own pocket and we will be thankful for whatever we get, we do want it to be able to give Karter the greatest opportunity at independance as possible.

I will post a couple of pictures of the equipment later when we confirm what he will be receiving.