Well, it has been about a week since we have returned from our amazing time away. I spent the last week just catching up and re-introducing myself back into reality. I figured you may be interested in an update on Karter.
While we were in Maui, Karter started having seizures in his sleep. About 40 minutes after he fell asleep, he would be woken by a seizure. This would happen at nap time and in the night. We called Children's Hospital and they advised us to increase the dosage of his medication. We did. The seizures went from three times a day to once or twice. They have continued fairly regularly since then.
We do have an appointment with our family doctor this week and with Dr. Connoly at the end of the month. I will be calling again and they may have to up that appointment. Although it sounds like we have taken a step back, we feel like this is par for the course. Karter has not regressed in any way. Really, I think we have made a few gains. He is not really effected by the seizures, he just returns to sleep after they happen. It will however be interesting to hear the doctors perspective on what is going on. It is becoming increasingly harder to keep his meds balanced now that he has started to grow and gain weight - but we are so thankful for that growth.
While we were away, Karter started to roll to his side quite frequently and has made it over a few times. He is trying really hard, it is so nice to see that motivation in him. Also, we have seen him really start to grab things on this tray with his right hand. It is purposeful movement, something we have not yet seen. In addition, we have noticed a real improvement in his tracking and eye gaze. He is tracking objects and people a lot better now. He is also making much better eye contact.
I will keep you updated as to what the outcome is with this influx of seizures. Please keep Karter in your prayers and join us and we pray that these seizures will pass and come under control with easy solutions.
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